Tuesday 07 April
08:00

Tuesday 07 April

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REG
08:00 - 09:00

Registration

09:00

Tuesday 07 April

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WEL
09:00 - 10:00

Welcome Speech By Organizers

Organisateurs: Jacques ELION (Professor) (Paris, France), Isaac ODAME (Hematologist) (Burlington, Canada)
Salle 1
10:00

Tuesday 07 April

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PLS1
10:00 - 10:20

Plenary Session 1

Chairman: Isaac ODAME (Hematologist) (Burlington, Canada)
10:00 - 10:20 The Epidemiologies of Sickle Cell Disease. Frederic B. PIEL (Senior Lecturer) (London, United Kingdom)
Salle 1
10:20 Coffee Break
10:40

Tuesday 07 April

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PSS1
10:40 - 12:10

PARALLEL SESSION 1
Pregnancy in Sickle Cell Disease

10:40 - 11:00 SCD and Pregnancy-US Perspective. Caterina P MINNITI (Bronx, USA)
11:00 - 11:20 Sickle Cell Disease and Female Health – The In- dian Perspective from the Odisha Sickle Cell Project. Patel SIRIS (Odisha, India)
11:20 - 11:40 Pregnancy and Sickle Cell Disease in Africa. Mohammed CHERIF-RAHIMY (Cotonou, Benin)
11:40 - 11:55 Oral Presentation selected from Abstract.
11:55 - 12:10 Oral Presentation selected from Abstract.
Salle 1

Tuesday 07 April

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PSS2
10:40 - 12:10

PARALLEL SESSION 2
Pulmonary Dysfuctions and Acute Chest Syn- drome in Sickle Cell Disease

10:40 - 11:00 Clinical and Research Priorities in Lung Disease in Sickle Cell. Elisabeth KLINGS (Boston, USA)
11:00 - 11:20 Lung Disease in Sickle Cell Disease: Complications and Management. Mickael DEBAUN (Nashville, USA)
11:20 - 11:40 Pulmonary hypertension in SCD: from diagnosis to managment. Laurent SAVALE (Paris, France)
11:40 - 11:55 Oral Presentation selected from Abstract.
11:55 - 12:10 Oral Presentation selected from Abstract.
Salle 2

Tuesday 07 April

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PSS3
10:40 - 12:10

PARALLEL SESSION 3
Pathophysiology and Basic Science (session 1)

Chairmen: Lucia DE FRANCESCHI (Verona, Italy), Caroline LE VAN KIM (Paris, France)
10:40 - 11:00 Ischemia-Reperfusion: Novel Therapeutic Targets. Robert HEBBEL (Minneapolis, USA)
11:00 - 11:20 Inflammation in Sickle Cell Disease. Nicola CONRAN (Campinas, Brazil)
11:20 - 11:40 Neutrophils in Sickle Cell Disease: Role and Mecha- nism of Action. Berengere KOEHL (Paris, France)
11:40 - 11:55 Oral Presentation selected from Abstract.
11:55 - 12:10 Oral Presentation selected from Abstract.
Salle 3
12:10

Tuesday 07 April

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BRK2
12:10 - 14:00

Lunch
LUNCH / PATIENT SESSION

14:00

Tuesday 07 April

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PSS1/2
14:00 - 15:30

PARALLEL SESSION 1
Hydroxycarbamide in Sickle Cell Disease

Chairmen: Leon TSHILOLO (Kinshasa, Congo), Russel WARE (Cincinnati, USA)
14:00 - 14:20 HC: Optimal Dosing and Limited Lab Monitoring. Patrick MCGANN (Cincinnati, USA)
14:20 - 14:40 Hydroxycarbamide: The European Experience. Mariane DE MONTALEMBERT (Paris, France)
14:40 - 15:00 HC: For a Wider access to Treat SCD Patients Worldwide. Bernard DAUVERGNE (Paris, France)
15:00 - 15:15 Oral Presentation selected from Abstract.
15:15 - 15:30 Oral Presentation selected from Abstract.
Salle 1

Tuesday 07 April

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PSS2/2
14:00 - 15:30

PARALLEL SESSION 2
Clinical Variability in Sickle Cell Disease

14:00 - 14:20 Clinical and Genetic Varia- bility in Sickle Cell Disease. Martin H STEINBERG (Boston, USA)
14:20 - 14:40 Environmental factors and Sickle Cell Disease: Effects and Outcomes. David REES (United Kingdom)
14:40 - 15:00 Genomics and Sickle Cell Disease in Africa. Solomon OFORI ACQUAH (Pittsburgh, USA)
15:00 - 15:15 Oral Presentation selected from Abstract.
15:15 - 15:30 Oral Presentation selected from Abstract.
Salle 2

Tuesday 07 April

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PSS3/2
14:00 - 15:30

PARALLEL SESSION 3
Neonatal Screening in Sickle Cell Disease

14:00 - 14:20 Neonatal Screening in the Northern Hemisphere. Stephan LOBITZ (Cologne, Germany)
14:20 - 14:40 Newborn Screening for Sickle Cell Disease in the Caribbean. Jennifer KNIGHT-MADDEN (Committee Member/Speaker) (Kingston, Jamaica)
14:40 - 15:00 Neonatal Screening of Sickle Cell Disease in Africa. Obiageli NNODU (Director, Consultant Haematologist) (Abuja, Nigeria)
15:00 - 15:15 Oral Presentation selected from Abstract.
15:15 - 15:30 Oral Presentation selected from Abstract.
Salle 3
15:30 Coffee Break
15:45

Tuesday 07 April

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PSS1/3
15:45 - 16:55

PARALLEL SESSION 1
Infection and Sickle Cell Disease

15:45 - 16:05 Infection and SCD in Africa - A Global View. Stephen OBARO (Omaha, USA)
16:05 - 16:25 Life Threatening Infection in SCD –European Pers- pective. Cristina EPALZA-IBARRONDO (Madrid, Spain)
16:25 - 16:40 Oral Presentation selected from Abstract.
16:40 - 16:55 Oral Presentation selected from Abstract.
Salle 1

Tuesday 07 April

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PSS2/3
15:45 - 16:55

PARALLEL SESSION 2
Pain and Sickle Cell Disease

Chairman: Thomas COATES (Los Angeles, USA)
15:45 - 16:05 Pain and SCD: Prevention and Management. Gupta KALPNA (Irvine, USA)
16:05 - 16:25 Sleep and Music Interven- tions: Exploring Comple- mentary Approaches to Pain. Sonya WANG (Minnesota, USA)
16:25 - 16:40 Oral Presentation selected from Abstract.
16:40 - 16:55 Oral Presentation selected from Abstract.
Salle 2

Tuesday 07 April

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PSS3/3
15:45 - 16:55

PARALLEL SESSION 3
Transition: from pediatric to adult care

Chairmen: Mariane DE MONTALEMBERT (Paris, France), Dapa DIALLO (Bamako, Mali)
15:45 - 16:05 Title: TBC. Inusa BABA (Londres, United Kingdom)
16:05 - 16:25 Challenges and opportu- nities for adolescents with sickle cell disease. Monika ASNANI (Kingston, Jamaica)
16:25 - 16:40 Oral Presentation selected from Abstract.
16:40 - 16:55 Oral Presentation selected from Abstract.
Salle 3
16:55

Tuesday 07 April

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PSA
16:55 - 18:00

Poster session A

Salle 1
Wednesday 08 April
08:00

Wednesday 08 April

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REG2
08:00 - 09:00

Registration

09:00

Wednesday 08 April

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PLS2
09:00 - 09:30

Plenary Session
A 45 Year Odyssey through the Sickle Cell Disease World.

Chairman: Isaac ODAME (Hematologist) (Burlington, Canada)
Salle 1
09:30

Wednesday 08 April

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SCD
09:30 - 10:00

SICKLE CELL DISEASE PART1
SICKLE CELL DISEASE: IN A GLOBAL STATE OF MIND

Chairmen: Gupta KALPNA (Irvine, USA), Kuaku OHENE-FREMPONG (Kumasi, Ghana)
Salle 1
10:00

Wednesday 08 April

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PSCDC
10:00 - 10:20

Progress in Sickle Cell Disease
Progress in Sickle Cell Disease Care: Past, Present and Future

Speaker: Alexis THOMPSON (Chicago, USA)
Salle 1
10:20

Wednesday 08 April

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TGBC
10:20 - 10:30

The Genetics Behind Cerebrovascular Complications in SCD

Speaker: John BREWIN (Londres, United Kingdom)
Salle 1
10:30 Coffee Break
11:00

Wednesday 08 April

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SCD2
11:00 - 12:00

SICKLE CELL DISEASE PART2
SICKLE CELL DISEASE: IN A GLOBAL STATE OF MIND

Chairmen: Jacques ELION (Professor) (Paris, France), Frederic B. PIEL (Senior Lecturer) (London, United Kingdom)
11:00 - 11:20 SCD care: The African Point of View. Leon TSHILOLO (Kinshasa, Congo)
11:20 - 11:40 Living with Sickle Cell Disease: Promises and Challenges of Digital Health. David ISSOM (Geneva, Switzerland)
11:40 - 11:50 Abstract selected for the Dominique Labie Prize.
11:50 - 12:00 Abstract selected for the Sir David Weatherall Prize.
Salle 1
12:00

Wednesday 08 April

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BRK5
12:00 - 13:30

Lunch
LUNCH / PATIENT SESSION

13:30

Wednesday 08 April

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PSS1/4
13:30 - 15:00

PARALLEL SESSION 1
Novel Therapies in Sickle Cell Disease

Chairman: Ana Cristina SILVA-PINTO (medical coordinator of SCD program) (Ribeirão Preto, Brazil)
13:30 - 13:50 Gene Therapy for SCD: Progress and Future Challenges. Julie KANTER (Alabama, USA)
13:50 - 14:10 Hematopoietic Stem Cell Transplantation for Sickle Cell Disease: Outcomes and Future. Eliane GLUCKMAN (Paris, France)
14:10 - 14:30 Pharmacological Approaches to the Treatment of Sickle Cell Disease. Kenneth ATAGA (Memphis, USA)
14:30 - 14:45 Oral Presentation selected from Abstract.
14:45 - 15:00 Oral Presentation selected from Abstract.
Salle 1

Wednesday 08 April

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PSS2/4
13:30 - 15:00

PARALLEL SESSION 2
non-SS Disease Session

13:30 - 13:50 SC Disease in West Africa. Dapa DIALLO (Bamako, Mali)
13:50 - 14:10 Overview of SCD in the Mediterranean Region: A Closer Look at Sß-thalas- semia patients. Miguel ABOUD (Beirut, Libya)
14:10 - 14:30 Compound Heterozygote Sickle Syndrome in the Gulf Area. Adekile ADEKUNLE (Safat, Kuwait)
14:30 - 14:45 Oral Presentation selected from Abstract.
14:45 - 15:00 Oral Presentation selected from Abstract.
Salle 2

Wednesday 08 April

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PSS3/4
13:30 - 15:00

PARALLEL SESSION 3
Pathophysiology and Basic Science (Session 2)

Chairmen: Nicola CONRAN (Campinas, Brazil), Wassin EL NEMER (Paris, France)
13:30 - 13:50 Research on Sickle Cell Mouse Models: Challenges and Outcomes. Lucia DE FRANCESCHI (Verona, Italy)
13:50 - 14:10 Innate Immune Cells in SCD: A Focus on Mast Cells. Slimane ALLALI (Paris, France)
14:10 - 14:30 CRISPR/Cas9-based Therapeutic Strategies for Sickle Cell Disease. Annarita MICCIO (Paris, France)
14:30 - 14:45 Oral Presentation selected from Abstract.
14:45 - 15:00 Oral Presentation selected from Abstract.
Salle 3
15:00 Coffee Break
15:15

Wednesday 08 April

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PSS1/5
15:15 - 16:40

PARALLEL SESSION 1
Brain and Cerbrovascular complications

15:15 - 15:35 Neurological Damage in Sickle Cell Disease: Patho- physiology, Management & Prevention. Fenella KIRKHAM (Londres, United Kingdom)
15:35 - 15:50 Cerebral Vasculopathy in Children with SCD: Detection, Prevention and Management. Françoise BERNAUDIN (Créteil, France)
15:50 - 16:10 Oral Presentation selected from Abstract.
16:10 - 16:40 Oral Presentation selected from Abstract.
Salle 1

Wednesday 08 April

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PSS2/5
15:15 - 16:40

PARALLEL SESSION 2
Psychosocial session

15:15 - 15:35 Psychological Therapies for Sickle Cell Disease. Anie KOFI (Londres, United Kingdom)
15:35 - 15:50 Oral Presentation selected from Abstract.
15:50 - 16:10 Oral Presentation selected from Abstract.
16:10 - 16:40 Oral Presentation selected from Abstract.
Salle 2

Wednesday 08 April

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PSS3/5
15:15 - 16:40

PARALLEL SESSION 3
E-medicine

15:15 - 15:35 Digital Health: The African Experience. Oumar Bagayogo CHEICK (Bamako, Mali)
15:35 - 15:50 Oral Presentation selected from Abstract.
15:50 - 16:10 Oral Presentation selected from Abstract.
16:10 - 16:40 Oral Presentation selected from Abstract.
Salle 3
16:40

Wednesday 08 April

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PSB
16:40 - 18:00

Poster session B

Salle 1
Thursday 09 April
09:00

Thursday 09 April

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PSS1/6
09:00 - 10:30

PARALLEL SESSION 1
Transfusion

09:00 - 09:20 Update on New Blood Groups and Consequences on SCD. Thierry PEYRARD (Paris, France)
09:20 - 09:40 TBA.
09:40 - 10:00 Alloimmunization and Sickle Cell Disease. France PIRENNE (Créteil, France)
10:00 - 10:15 Oral Presentation selected from Abstract.
10:15 - 10:30 Oral Presentation selected from Abstract.
Salle 1

Thursday 09 April

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PSS2/6
09:00 - 10:30

PARALLEL SESSION 2
Mortality in Sickle Cell Disease

09:00 - 09:20 Mortality in SCD – Indian Perspective. Jain DIPTY (Maharashtra, India)
09:20 - 09:40 Mortality and Sickle Cell Disease in Brazil. Clarisse LOBO (Rio de Janeiro, Brazil)
09:40 - 10:00 Oral Presentation selected from Abstract.
10:00 - 10:15 Oral Presentation selected from Abstract.
10:15 - 10:30 Oral Presentation selected from Abstract.
Salle 2

Thursday 09 April

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PSS3/6
09:00 - 10:30

PARALLEL SESSION 3
Integrative Physiology and Sickle Cell Disease

09:00 - 09:20 Autonomic Nervous System, Vasoconstriction and the Transition from Steady State to Vasoocclusive Crisis. Thomas COATES (Los Angeles, USA)
09:20 - 09:40 Beneficial Effect of Exer- cise in SCD. Pablo BARTOLUCCI (PARIS)
09:40 - 10:00 Sickle Cell Disease: From Acute Excercise to Training. Philippe CONNES (Lyon, France)
10:00 - 10:15 Oral Presentation selected from Abstract.
10:15 - 10:30 Oral Presentation selected from Abstract.
Salle 3
10:30 Coffee Break
11:00

Thursday 09 April

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PSS1/7
11:00 - 12:40

PARALLEL SESSION 1
Partnership in Sickle Cell Disease between and wit- hin countries

11:00 - 11:20 Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia. Marie-Dominique HARDY-DESSOURCES (Point-a-Pitre, Guadeloupe)
11:20 - 11:40 Title: TBA. Julie MAKANI (Dar-es-Salaam, Tanzania, United Republic of)
11:40 - 12:00 African Research and Inno- vative Initiative for Sickle cell Education: Implication for Service Improvement". Inusa BABA (Londres, United Kingdom)
12:00 - 12:20 Comprehensive System of Care for Sickle Cell Disease in Brazil. Ana Cristina SILVA-PINTO (medical coordinator of SCD program) (Ribeirão Preto, Brazil)
12:20 - 12:40 Challenges of SCD Cohort Studies in Africa. Brigitte RANQUE (Paris, France)
Salle 1

Thursday 09 April

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PSS2/7
11:00 - 12:40

PARALLEL SESSION 2
Round Table Session «Article & Grant Writing»

11:00 - 11:20 Article Writing. Lan-Lan SMITH (Londres, United Kingdom)
11:20 - 11:40 Program of session TBA.
11:40 - 12:00 Program of session TBA.
12:00 - 12:20 Program of session TBA.
12:20 - 12:40 Program of session TBA.
Salle 2

Thursday 09 April

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PSS3/7
11:00 - 12:40

PARALLEL SESSION 3
Patient Session

11:00 - 11:20 Program of session TBA.
11:20 - 11:40 Program of session TBA.
11:40 - 12:00 Program of session TBA.
12:00 - 12:20 Program of session TBA.
12:20 - 12:40 Program of session TBA.
Salle 3
12:40

Thursday 09 April

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BRK8
12:40 - 14:00

Lunch

14:00

Thursday 09 April

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RDT
14:00 - 16:00

Round Table
Toward a Global Coalition to Conquer Sickle Cell Disease

Chairman: Isaac ODAME (Hematologist) (Burlington, Canada)
Salle 1
16:00

Thursday 09 April

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CLS
16:00 - 16:30

Closing comments of the Chairs

Salle 1